All his life, Jacob lived with a mitochondrial disease, a genetic disorder affecting the body’s mitochondrial cells. He spent much of his life at Children's Hospital Colorado; one year he was there for more than 130 days. It became his – and his family’s - second home. Jacob was a happy, loved boy. He showed everyone what it means to fight, and what it means to truly love life. Jacob loved going to school, and being surrounded by children. Swimming in the neighborhood pool was always a highlight. Jacob loved music, and having people read books to him. He got very good at crafting and doing art projects. Jacob loved hanging out with his family, and he loved Minions.

Jacob’s feisty spirit impacted everyone he met. The little boy fought against all odds to live as long as he did – and he was determined to live life on his terms. Jacob's disease didn't define him.